|All Wrapped Up!|
These stays are never fun. You are literally asking for what you are trying so earnestly to stop. The release form when you come into the Epilepsy Monitoring Unit warns you that death is a possible side effect of this test. You also are in a room with Oxygen, Suction, CPR tools, and all sorts of other life saving tubes and devices just sitting at the ready.
Meanwhile, I am making it fun, singing songs, coloring, playing silly games (candy land is her favorite) and making craft, after craft, after craft. She hopes to have some visitors at some point and I hope for her sake that she does. She is such a selfless little girl, she never asks for anything. But together we will get through it.
I am very blessed to have my friend Brittany, who is also a special needs mama, take my youngest on as her own this week. He is spending the night at her house and she is taking him to and from pre-k. The our dear friend Pepsi has the other three kids in the morning before they walk to school for Breakfast and Brendan will be home in time to meet them after school. It is a busy week, but I am so glad that I am here, close to my other babies, and around nurses that I love. I only wish I could convince some of my Texas Doctors to come to this hospital and for them to bring some of their practices too!
We do not know what tomorrow may bring but for now, we are slowly drifting off into lala land!
Sweet Dreams! And if you have a purple shirt and can post a pic of yourself wearing purple (even if it is purple pants or socks) please post it on her page Facebook.com/avacake !!!! I would love to show her some love that way!
Thanks for following us on this journey! A video will follow soon!!!