Saturday, May 9, 2009

Too Many Seizures!

Yesterday, Avagrace was standing at the back door watching our neighbor mow our lawn for us as I was washing strawberries for dinner, when Aidan yells "Mom, Gracie, her-thing-the seizure stuff" So I ran to her, asked him to grab a phone and call 911, he got scared and said he would ask Mr. Dennis to because we couldn't find the phone anyway. Not finding the phone is a never ending problem in this house, even though we have two landlines and a cell phone. I stayed with Gracie and helped to keep her airway open and her safe while my neighborhood pulled together to call 911, get the other kids out of the house so that they didn't have to see their sister seizing, and directing the medics, security forces, and fire trucks to where we were. The seizure lasted only about three minutes so we stayed home for the first time and didn't go to the ER (because other than oxygen they don't do anything there anyway) instead they gave her 15 minutes of oxygen and then I nursed her back to alertness and fed her when she woke up.

Three hours later it was bedtime. I allowed her to cuddle with me in my bed for a bit. However, I then told her it was time to go to her bed. I never want to do this but our neurologist said it is a very bad idea to allow the child to get use to co-sleeping due to the seizures because it will be a manipulation tool, and it could make the child fearful unnecessarily. It is also something that I have to deal with as far as not being worried. Lastly, he added to not let the epilepsy get in between our marriage. I understand his points, but, well never mind. I try to do this most nights. I don't want my kids to see me scared. But last night Bren wasn't home, he is deployed, and I just felt like she should be with me. Call it mother's instinct or God's quiet voice (that is what I call it). So four hours after seizure number one she shot straight up in bed and screamed and then slammed back with her hands curled up, her eyes rolled back, and her body seizing to the point of doing crunches. I had never seen her be so violent. Usually the seizures come across as tense straight as a board with tremors, jerks of limbs, etc. There was still the foaming of the mouth and not breathing. This time she turned blue. after 7 minutes I was able to maneuver her in a safe place so I could run to get her medicine to stop it and I administered it. She calmed but remained in seizing mode. She was able to take gasps of air here and there but continued seizing for thirty minutes until we got to the hospital. She was then unconscious, and I mean completely out of it to the point where that smelly stuff, standing her up, and shaking her did not wake her to even a grunt. She remained this way for nearly four hours. Thankfully she came to five minutes before they were going to do the CT scan.

This was by far the craziest seizure yet due to how violent and unusual it was. We are not feeling right about our current Neurologist so the ambulance took us to children's this time just to get a more thorough evaluation. I was blessed with not one but two amazing ER docs who recommended two things. One that we follow our instincts and go to the epilepsy center in Dallas or wherever because Gracie has a very serious case of epilepsy, per her EEG and her current state of health. Two that we start a gluten and dairy free diet in our home. So this is my next step.

When we finally got home and relieved Lindsey, my true God send that stayed with my other four most precious parts of my life, it was 3:30 am! I got Gracie to my bed, fed Liam, and laid down next to her only to see her seize two more times. Thank God that these two seizures only lasted a few seconds each.

She has had a good day and is sleeping next to me now. I can't wait until my best friend and parenting teammate comes home. Bren will be enrolling in school and working on getting excepted into a program so that he can expedite his future officer status so that we can be closer to better hospitals.

Something really amazing to me was that my lovely neighborhood came together both times to help with the seizures and their aftermath. They even made dinner for us tonight and are bringing dinner tomorrow. Each house made a different part of dinner and boy was it good! Then our friends from Bren's work took the boys out for a bowling date which was an amazing gift to my poor Aidan right now. He is six and carries the weight of the world on his shoulders. He is very upset that Daddy isn't home right now and he fears that Gracie will die. Unfortunately he has been the first to see Gracie seizing each time, until the second one last night. He slept through that one and THANK GOD!! And of course I already mentioned Lindsey and Joe who were here all night, made the kids breakfast this morning, and took Liam for a while today too. (Not to mention brought me Pink Swirls which I am eating right now lol).

Today I also was blessed with two lovely Mother's Day presents. Our friend Daniel stopped by because he is deploying on Wednesday and he heard what was happening around here so he brought a box of candies and a Mother's Day balloon. Then, Amy stopped by with a huge box of flowers from my amazing husband. I will try to post a pic tomorrow. They are the most beautiful roses I have ever seen, in a beautiful vase, and the roses are all different colors. They even came with a box of chocolates. It was great that he got Amy to deliver them too because I had not seen her since December because she has been deployed. I really like Amy and it is great that she is back!

So overall, it has been quite a day with TOO MANY seizures!

Thursday, May 7, 2009

A tale of two bugs...

So today (that must be my favorite way to start off a blog, *smiles). Anywho, ( i like that word too, but ok I will stop with the side notes, ha! However, this feels like a blog for word creation!). Earlier today Violet comes running from the playroom in a squiggily, squirm-ish fashion. She was groaning, and fussing a bit but clearly on a mission. She had her fist clenched and held out in front of her and I just knew what it was...DUN, DUN, DUN THE RETURN OF BUG GIRL, CATCHER OF THE YEAR! LOL, ok I am in a cheesy mood I suppose. She was making a bee line to the trash can to dispose of whatever bug invade her and her indoor-bug-a-phobic siblings' playroom. That is right, indoor-bug-a-phobic, my new word. It means children who are interested by bugs outside (as long as they are not fliers) but are scared of any bug inside the house including the tiniest scavenger ant: indoor-bug-a-phobic. Violet did this last year. She would catch crickets and as they jumped in her clenched fist and she would freak out but she wouldn't put it down. She would squeal and yell and beg us to open the door for her because she could not quite reach it yet. Our solution to her turmoil was to teach her to throw it into the toilet or the trash can. So now that the bugs are coming in, she is back at it. Our huge concern with this practice is the poisonous spiders of Oklahoma. We taught her not to touch spiders last year so I suppose a refresher course is needed.

On another note, Avagrace found a beetle today. Outside of course, because she was very enthralled with it. She excitedly told me that the beetle was tickily and she loved to hold it. It was also shiny and she wished it could be her pet. Um, that would be a No, but it did make me smile. Especially the tickily part!

Liam is suffering, and I mean making mama suffer too, with a double ear infection in one ear and a severe ear infection in the other. He has been up crying two nights in a row and I have been up walking, singing, and doing the baby dance. So whilst it is quiet in this room of mine, I will end my daily blog for a chance to shower and maybe catch a few zzzzz's before night duty begins. How many days until this deployment is over?????

If you enjoy this blog please leave a comment or announce that you are following it (you can do this anonymously) I am trying to get a count of my readers for possible contests, sponsors, etc in the future. Thanks so much!

Wednesday, May 6, 2009

To Market, To Market...

To Market, To Market, To buy a fat pig....well ok I am not buying a pig but I do wish I was going to market. Instead of a pig I want everything. No not everything, just a lot of things from the Ikea market. Have you ever been to Ikea? Unfortunately I am in the desert of Ikea's and I am going through total Ikea withdraw. I want nothing more than a huge gift card, LOL, and a day to just roam the Ikea utopia! I love their Swedish/Scandinavian accents and their fun artsy pieces. Everything in Ikea just screams Virginia. Hopefully, when Brendan gets back I will be able to drive the 3.5 hours to the store, BY MYSELF, not that I don't like my family but I so want to get lost in the store and soak every second in. Wow, I sound ill, LOL.

Othere designers that inspire me like this are Anna Maria Horner fabrics. If you haven't seen her designs yet check them out here, http://www.annamariahorner.com/ I so wish that I could have the dress that the girl is wearing on her front page. I also wish I could have a stack of fat quarters of each and every one of her fabrics to design my home and blankets for the military kiddos!

I am also inspired by Dr. Bill Gothard. He is an amazing pastor, I get his IBLP daily email devotionals and I love them. If you are interested you can sign up for them here: http://iblp.org/iblp/discipleship/dailysuccess/enroll/ I look forward to them each morning. I hope to meet him one day and I can't wait to begin the character lessons with my family from the ATI, founded by him as well. In June Bren and I are going to the Basic Seminar here in OKC, I can't wait. I am looking forward to it as if it were a vacation.

Have you ever noticed that you can also be inspired by things that are not fun, good, or enjoyable? Right now we are going through a tough time in our family. Breya has tumors, Violet has Kidney trouble, Avagrace has epilepsy/seizure disorder, and Aidan has quite a bit going on that cannot be explained in just one word. However, it is these trials that have inspired me to look at my life differently, refocus my attention in different areas, and to truly step out and try to grasp my dreams. I do hope and pray that I will be a successful freelance writer very soon, as I also hope to be a published author and small-time artist. I feel like God has put Bren and I at this crossroad where we are being asked to choose a path that is straight and incredibly narrow, or a path that is wide open and bendy. Which would you choose? I am not going to lie to you. The straight and narrow definitely looks to be more difficult. It is not as open and sunny. It is not as free and it harder to see what is ahead. However, I know which one God tells us to choose, Now we just have to link arms, hands, and hearts, and step out-together- May god please bless my husband with a renewed zest for living life fully and abundantly under the yoke of Christ! And, may he bless me with a renewed humility to move freely about as his helpmeet and friend!

Monday, May 4, 2009

Freelance

Today marked a very important step in my plan for accomplishing my dreams. I sent three articles to an editor and Co-Founder of a great magazine. She requested my work and I have been diligently editing and choosing my three favorite pieces that would target her readers. I finally made my choices and sent them off with prayer. The opportunity to do freelance writing from home is so exciting to me, I wasn't going to announce this step but, I can barely contain my joy and excitement. I thank you for your support and who knows, maybe you will see my name in a printed by-line very soon!

I had a great day chatting with a fellow military spouse, and fellow radar shop wife. We got to relax during naptime and laugh about the crazy life we live. It was also great to hear that we have had many of the same struggles when it comes to adjusting to the military spouse lifestyle. She gave me great inspiration for my Air Force spouse writings! Stay tuned.... :)

On another note, Aidan got his glasses today and they are so adorable. He was meant for glasses! They just fit him so perfectly. He wanted red ones, that was his only requirement. Well they are red alright, and very stylish. He always has had a great fashion sense about him! It is the Russell in him!

My living room is also one step closer to being complete. I should be finished tomorrow and will try to post pictures. However, I can't post too many because it is a surprise for Bren for when he gets home.

Well, it is off to bed for me. Have sweet dreams everyone!

Sunday, May 3, 2009

A Blog A Day Keeps The Sandman Away!

A blog a day keeps the writer in me alive! At least this is my hope. Although I must admit that tonight I am feeling rather drained of creative juices. I am in Sunday night mode. Tomorrow starts another week and a rather important one at that. I have a ton of deadlines, meetings, and responsibilities at work and I am still without a babysitter. I also have some writing deadlines and I can't seem to feel confident enough in any of my articles to send them on.

On the other hand I had a great day at church, followed by a productive day in my home with the help of Lindsay and Joe and it seems that I just might get this house in order before Bren gets home, after all! This is my hope! So tomorrow I finish up loose ends in the play room and living room, I work harder on finding a sitter, and I get to work on work. Then Thursday I can start on the office!!!! I cannot wait for this task! I might actually have a studio by this time next week!

So with that I will ask you dear reader a question. What would you like to read from me? What articles would you like to read in a military spouse magazine? What articles would you like to read in a family magazine? Please help me out with some ideas!!!! Thanks so much!