Saturday, October 31, 2009

Tomorrow begins Epilepsy Awareness Month

Tomorrow is our first year experiencing Epilepsy Awareness Month. It has been a Nationally recognized Campaign since 1968 but until we got the diagnosis of epilepsy for our beautiful four year old back in March, epilepsy was not something that we ever thought about. This needs to change. There are so many myths about epilepsy and a lot of confusion about what to do, what it is, and how to deal with it. In partnering with the Epilepsy Foundation I am going to be sharing facts here all month long. On top of that Brendan and I are going to be raising money for Epilepsy Research and for families experiencing the financial burden of Epilepsy. Now many of you may be thinking, "it's just a seizure, no big deal right?" Wrong! You couldn't be more wrong. My first fact is very sobering! The same number of people die each year from epilepsy as do people from breast cancer and people from car accidents! Pretty crazy when you think about it. On top of that more than 60% of those who die from epilepsy are children under the age of 15! So, now do you see why we need to get the word out? If you would like to donate to the Epilepsy Foundation in Avagrace's name please email me at virginia.spencer@yahoo.com. Thank you so much!

I will still be sharing my normal blog stuff but this is my focus this month! But for a cute Halloween add-on. Avagrace has a lot of difficulty remembering words, names, etc...it is a major side effect from her meds. Sometimes it is very dramatic like forgetting her own name for an hour or more. Other times, like tonight, we all get a good laugh out of it! Tonight while trick-or-treating she saw a child dressed as Sponge Bob and she thought it was very cute. It was made out of a box and was very creative! She squealed, "Look Mommy! It's Sponge Bob Squirt Pants!" Oh how we laughed, it was great!

3 comments:

  1. My daughter was born with life-threatening seizure disorder. They didn't diagnose her with epilepsy until later. She no longer has seizures and no longer requires medication, but it was hard back then. I'm glad you are raising awareness.

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  2. I stumbled across you page by a google search. My son suffers from Epilepsy as well. He is 19mths old and was diagnosed when he was 5mths. There is strength in numbers. God bless you for spreading the word about Epilepsy! visit our site at www.ourfamilyof4.com

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  3. Our son was diagnosed @ 3 and we decided to do our part in educating our friends and family about Epilepsy. Please share our sites with your friends. I have added your blog to our social network. Thank you for finding the courage and determination to become involved!
    www.joaquinthebean.com & www.rockepilepsy.ning.com

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